Abordari socio-bioetice ale calității vieții pacienților cu boli rare din Republica Moldova

Abstract

The thesis focuses on the social and bioethical approaches to the analysis of the problem of rare diseases, particularly focusing on the quality of life of the patients form the Republic of Moldova. Bioethics, with its legal, medical and ethical aspects, can serve as a tool in offering guidelines to identifying the solutions to the problem of rare diseases.